Heggy Blog

We have loved our first 5 1/2 weeks with our sweet baby Cash…even though we’ve had some difficult news. We have had some expected (kind of) and unexpected things happen regarding his health. He, like James, was diagnosed four days after birth with MCAD deficiency (to learn more about that go here), which means we are feeding him every three hours (which would be a nice stretch for me since he eats every two right now). It was hard to hear the news even though we knew there was a possibility. It’s never easy to hear that your child has special needs–especially when they could be life-threatening. Each of our children have a 25% chance of having the disease and we are now 2 for 2. This time around we feel much more prepared to handle it and can see how happy and well James is, which is comforting.

The other added stress we’ve had that was not expected was discovered after our appointment at Primary Children’s when we met with the specialist for MCAD. They take blood at each appointment and apparently Cash had (and still has) high potassium. It is critically high. We have gone back for more blood tests each week since then and it is continuing to drop. We are just praying that it will keep dropping. I wasn’t aware of the dangers associated with high potassium, what it could mean, and so I did some reading. While it could be many different things, none of them are minor problems (kidney disease being the most common cause). We are just praying that his potassium levels will drop to a normal range. We will be going back at the beginning of next week for more testing.

It’s so hard to feel so helpless…

(Cash after getting blood drawn from both hands…poor guy)

We just need prayers.